1. Someya Y, Wells Y. Current issues on ageing in Japan: a comparison with Australia. Australas J Ageing 2008;27:8-13.

2. Mathers CD, Loncar D. Updated projections of global mortality and burden of disease, 2002 to 2030: data sources, methods and results. Ginebra: World Health Organization; 2005. Disponible en: http://www.who.int/healthinfo/statistics/bod_projections2030_paper.pdf

3. Heron M, Hoyert DL, Murphy SL, Xu J,  Kochanek KD, Tejada-Vera B. Deaths: final data for 2006.  Natl Vital Stat Rep. 2009;57:1-135. Disponible en: http://www.cdc.gov/nchs/data/nvsr/nvsr57/nvsr57_14.pdf  (accessed 6 Jun 2009).

4. World Health Organization. World health statistics 2009. Geneva: World Health Organization; 2009. Disponible en: http://www.who.int/whosis/whostat/EN_WHS09_Full.pdf (accessed 4 Jul 2009).

5. Janssen-Heijnen MLG, Houterman S, Lemmens VEPP, Louwmana MWJ, Maas HAAM, Coebergh JWW. Prognostic impact of increasing age and co-morbidity in cancer patients: a population-based approach. Crit Rev Oncol Hematol. 2005;55(3):231-40.

6. Hogan C, Lunney J, Gabel J, Lynn J. Medicare beneficiaries’ costs of care in the last year of life. Health Affairs. 2001;20(4):188-95.

7. Sepúlveda C, Marlin A, Yoshida T, Ullrich A. Palliative care: the World Health Organization’s global perspective. J Pain Symptom Manage. 2002;24(2):91-6.

8. Wright M, Wood J, Lynch T, Clark D. Mapping Levels of Palliative Care development. J Pain Symptom Manage. 2008;35(5):469-85.

9. Becker R. Palliative care 1: principles of palliative care nursing and end-of-life care. Nurs Times. 2009;105(13):14-6.

10. World Health Organization. Palliative care. Geneva: World Health Organization; 2009. Disponible en: http://www.who.int/cancer/palliative/en/... (accessed 31 Aug 2009)

11. Fitch M. Supportive care for cancer patients. Hosp Q. 2000;3(4):39-46.

12. Solano JP, Gomes B, Higginson IJ. A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease. J Pain Symptom Manage. 2006;31(1):58-69.

13. Janssen DJA, Spruit MA, Wouters EFM, Schols JMGA. Daily symptom burden in end-stage chronic organ failure: a systematic review. Palliat Med. 2008;22(8):938-48.

14. SUPPORT Principal Investigators. A Controlled Trial to Improve Care for Seriously Ill hospitalized Patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT). JAMA. 1995; 274(16): 1591-8.

15. Block S. Psychological issues in end-of-life care. J Palliat Med. 2006;9(3):751-72.

16. Williams A. Perspectives on spirituality at the end of life: a meta-summary. Palliat Support Care. 2006;4(4):407-17.

17. Chochinov HM. Dying, dignity and new horizons in palliative end-of-life care. CA Cancer J Clin. 2006;56(2):84-103.

18. McPherson CJ, Wilson KG, Murray MA. Feeling like a burden to others: a systematic review focusing on the end of life. Palliat Med. 2007;21(2):115-28.

19. Palliative Care Australia. The Hardest Thing We Have Ever Done 2004. Disponible en: http://www.palliativecare.org.au/Portals...

20. Hanratty B, Holland P, Jacoby A, Whitehead M. Financial stress and strain associated with terminal cancer: a review of the evidence. Palliat Med. 2007;21(7):595-607.

21. Bee PE, Barnes P, Luker KA. A systematic review of informal caregivers' needs in providing home-based end-of-life care to people with cancer. J Clin Nursing. 2009;18(10):1379-93.

22-23  Burridge L, Winch S, Clavarino A. Reluctance to care: a systematic review and development of a conceptual framework. Cancer Nurs. 2007;30(2):E9-19.

24. Lynch T, Clark D, Centeno C, Rocafort J, Flores LA, Greenwood A et al. Barriers to the development of palliative care in the countries of Central and Eastern Europe and the Commonwealth of Independent States. J Pain Symptom Manage. 2009;37(3):305-15.

25. Dunlop RJ, Davies RJ, Hockley JM. Preferred versus actual place of death: a hospital palliative care support team experience. Palliat Med. 1989;3(3):197-201.

26. Higginson IJ, Sen-Gupta GJA. Place of care in advanced cancer: a qualitative systematic literature review of patient preferences. J Palliat Med. 2000;3(3):287-300.

27. Tang ST. Influencing factors of place of death among home care patients with cancer in Taiwan. Cancer Nurs. 2002;25(2):158-66.

28. Gomes B, Higginson IJ. Home or hospital? Choices at the end of life. J R Soc Med. 2004;97(9):413-414.

29. Gomes B, Higginson IJ. Where people die (1974-2030): past trends, future projections and implications for care. Palliative Medicine. 2008;22(1):33-41.

30. Gruneir A, Mor V, Weitzen S, Truchil R, Teno J, Roy J. Where people die: a multilevel approach to understanding influences on site of death in America. Med Care Res Rev. 2007;64(4):351-378.

31. Constantini M, Balzi D, Garronec E, Orlandini C, Parodi S, Vercelli M, Bruzzi P. Geographic variations of place of death among Italian communities suggest an inappropriate hospital use in the terminal phase of cancer disease. Public Health. 2000;114(1):15-20.

32. Weitzen S, Teno JM, Fennell ML, Mor V. Factors associated with site of death: a national study of where people die. Med Care. 2003;41(2):323-35.

33.  Bruera E, Russell N, Sweeney C, Fisch M, Palmer JL. Place of death and its predictors for local patients registered at a comprehensive cancer center. J Clin Oncol. 2002;20(8):2127-33.

34. Clifford CA, Jolley DJ, Giles GG. Where people die in Victoria. Med J Aust. 1991;155(7):446-56.

35. Gallo WT, Baker MJ, Bradley EH. Factors associated with home versus institutional death among cancer patients in Connecticut. J Am Geriatr Soc. 2002;49(6):771-77.

36. Small N, Barnes S, Gott M, Payne S, Parker C, Seamark D et al. Dying, death and bereavement: a qualitative study of the views of carers of people with heart failure in the UK. BMC Palliat Care. 2009; 16:8-6. Disponible en: http://www.biomedcentral.com/content/pdf... (accessed 30 Jun 2009).

37. Gomes B, Higginson IJ. Factors influencing death at home in terminally ill patients with cancer: systematic review. BMJ. 2006;334(7540):515-21.

38. Dyer C. Resources must be diverted to allow people to die at home. BMJ. 2008;337:a2750.

39. Wilson DM, Justice C, Sheps S, Thomas R, Reid P, Leibovici K. Planning and providing end-of-life care in rural areas. J Rural Health. 2006;22(2):174-81.

40. Veerbeek L, van Zuylen L, Swart SJ, van der Maas PJ, de Vogel-Voogt E, van der Rijt CC, et al. The effect of the Liverpool Care Pathway for the dying: a multi-centre study. Pall Med. 2008;22(2):145-51.

41. Veerbeek L, van der Heide A, de Vogel-Voogt E, de Bakker R, van der Rijt CC, Swart SJ, et al. Using the LCP: bereaved relatives' assessments of communication and bereavement. Am J Hosp Palliat Care. 2008;25(3):207-14.

42. Bravo G, Dubois MR, Wagneur B. Assessing the effectiveness of interventions to promote advance directives among older adults: a systematic review and multi-level analysis. Soc Sci Med. 2008;67(7):1122-32.

43. Ramsaroop SD, Reid MC, Adelman RD. Completing an advance directive in the primary care setting: what do we need for success? J Am Geriatr Soc. 2007;55(2):277-83.

44. Swartz RD, Perry E. Advance directives are associated with “good deaths” in chronic dialysis patients. J Am Soc Nephro. 1993;3(9):1623-30.

45. Detering KM, Hancock AD, Reade MC, Silvester W. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ. 2010;340:c1345, doi:10.1136/bmj.c1345

46. McAlister FA, Stewart S, Ferrua S, McMurray JJ. Multidisciplinary strategies for the management of heart failure patients at high risk for admission: a systematic review of randomized trials. J Am Coll Cardiol. 2004;44(4):810-9.

47. Eagar K, Owen A, Williams K, Westera A, Marosszeky N, England R et al. Effective caring: a synthesis of the international evidence on carer needs and interventions. Sydney: Sydney Business School Centre for Health Service Development; 2007. Disponible en: http://ro.uow.edu.au/chsd/27/

48. Honea NJ, Brintnall R, Given B, Sherwood P, Colao DB, Somers C et al. Putting evidence into practice: nursing assessment and interventions to reduce family caregiver strain and burden. Clin J Oncol Nurs. 2008;12(3):507-16.

49. Franks PJ, Salisbury C, Bosanquet N, Wilkinson EK, Lorentzon M, Kite S et al. The level of need for palliative care: a systematic review of the literature. Palliat Med. 2000;14(2):92-104.

50 . Luddington L, Cox S, Higginson I, Livesley B. The need for palliative care for patients with non-cancer diseases: a review of the evidence. Int J Palliat Nurs. 2001;7(5):221-6.

51. Jaarsma T, Beattie JM, Ryder M, Rutten FH, McDonagh T, Mohacsi P et al. Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology. Eur J Heart Fail. 2009;11(5):433-43.

52. Ferrell B, Virani R, Grant M, Juarez G. Analysis of palliative care content in nursing textbooks. J Palliat Care. 2000;16(1):39-47.

53. Wu HY, Malik FA, Higginson IJ. End of life content in geriatric textbooks: what is the current situation? BMC Palliat Care. 2006;31:5.  Disponible en: http://www.biomedcentral.com/content/pdf/1472-684X-5-5.pdf (accessed 15 Jul 2009).

54. Billings JA, Block S. Palliative care in undergraduate medical education. Status report and future directions. JAMA. 1997;278(9):733-8.

55. Lloyd-Williams M, MacLeod RD. A systematic review of teaching and learning in palliative care within the medical undergraduate curriculum. Med Teach. 2004;26(8):683-90.

56. Block SD. Medical education in end-of-life care: the status of reform. J Palliat Med. 2002;5(2):243-8.

57. Dickinson GE, Clark D, Sque M. Palliative care and end of life issues in UK pre-registration, undergraduate nursing programmes. Nurse Educ Today. 2008;28(2):163-70.

58. Mason SR, Ellershaw JE. Preparing for palliative medicine: evaluation of an education programme for fourth year medical undergraduates. Palliat Me.d 2008;22(6):687-92.

59. Glaser BG, Strauss AL. Awareness of dying. Chicago: Aldine Publishing; 1965.

60. Glaser BG, Strauss AL. Time for dying. Chicago:Aldine Publishing; 1968.

61. Lunney JR, Lynn J, Hogan C. Profiles of older Medicare decedents. J Am Geriatr Soc. 2002;50(6):1108-12.

62. Lunney JR, Lynn J,  DJ Foley, S Lipson, JM Guralnik.  Patterns of functional decline at the end of life. JAMA. 2003;289(18):2389-92.

63. Lynn J. Living Long in Fragile Health: The new demographics shape end of life care. Hastings Cent Rep. 2005;35:S14-8.

64. Saunders C. Into the valley of the shadow of death: a personal therapeutic journey. BMJ. 1996; 313:1599-1601.

65. Cassell E. The nature of suffering. New York: Oxford University Press; 1991.

66. Institute of Medicine. Approaching death, improving care at the end of life.  Washington DC: National Academy Press; 1997.

67. Murray S et al. Exploring the spiritual needs of people dying of lung cancer or heart failure: prospective qualitative interview study. Pall Med.  2004;18(1):39-45.

68. Grant E et al. Spiritual issues and needs: perspectives from patients with advanced cancer and non-malignant disease. A qualitative study. Pall Supp Care. 2004;2(4):371-78.

69. Murray S et al. Dying of lung cancer or heart failure: prospective qualitative interview study of patients and their carers in the community. BMJ. 2002;325(7370):929-32.

70. Murray S et al. Patterns of social, psychological and spiritual decline towards the end of life in lung cancer and heart failure. Journal of Pain & Symptom Management. 2007; 34(4):393-402.

71. Murray S et al. Palliative care in chronic illness. BMJ. 2005;330:611-612.

72. Taylor DH Jr, Ostermann J, Van Houtven CH, Tulsky JA, Steinhauser K. What length of hospice use maximizes reduction in medical expenditures near death in the US Medicare program? Soc Sci Med 2007;65(7):1466-78.

73. Gozalo PL, Miller SC, Intrator O, Barber JP, Mor V. Hospice effect on government expenditures among nursing home residents. Health Serv Res. 2008;43(1 Pt 1):134-53.

74. Morrison RS, Penrod SD, Cassel JB, Caust-Ellenbogen M, Litke A, Spragens L, Meier D. Cost savings associated with US hospital palliative care consultation programs. Arch Int Med. 2008;168(16):1783-90.

75. Gomez-Batiste X, Tuca A, Corrales E, Porta-Sales J, Amor M, Espinosa J, et al. Resource consumption and costs of palliative care services in Spain: a multicentre prospective study. J Pain Symptom Manage. 2006;31(6):522-32.

76. Berwick, D. A User’s Manual for the IOM’s ‘Quality Chasm’ Report. Health Affairs. 2002;21(3):80-90.

77. Bender JL, Hohenadel J, Wong J, et al. What patients with cancer want to know about pain: a qualitative study. J Pain Symptom Manage. 2008;35(2):177–87.

78. Fox E, Landrum-McNiff K, Zhong Z, Dawon NV, Wu AW, Lynn J. Evaluation of prognostic criteria for determining hospice eligibility in patients with advanced lung, heart, or liver disease. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. JAMA. 1999;282(17):1638-45.

79. Jaagosild P, Dawson NV, Thomas C, Wenger NS, Tsevat J, Knaus WA, et al.Outcomes of acute exacerbation of severe congestive heart failure: quality of life, resource use, and survival. SUPPORT Investigators. The study to understand prognosis and preferences for outcomes and risks of treatments. Arch Int Med. 1998;158(10):1081-9.

80. Porter-Williamson K, Parker M, Babbott S, Steffen P, Stites S. A model to improve value: The interdisciplinary palliative care service agreement. J Pall Med. 2009;12(7):609-15.

81. Gomes B, Higginson IJ. Factors influencing death at home in terminally ill patients with cancer: systematic review. BMJ. 2006;332(7540):515-21.

82. Dy SM, Shugarman LR, Lorenz KA, Mularski RA, Lynn J. A systematic review of satisfaction with care at the end of life. J Am Geriatr Soc. 2008;56(1):124-129.

83. Gomez-Batiste X, Porta-Sales J,  Pascual A, Nabal M, Espinosa J, Paz S, Minguell C, Rodríguez D, Esperalba J, et al. Catalonia WHO palliative care demonstration project at 15 years (2005). J Pain Symptom Manage. 2007;33(5):584-90.

84. Lynn J, Straube BM, Bell KM, Jencks SF, Kambic RT. Using population segmentation to provide better health care for all: the “bridges to health” model. Milbank Q. 2007;85(2):185–208.

85. Palliative Care Australia. Residential aged care and end of life position statement. Melbourne: Palliative Care Australia; 2009. http://www.palliativecare.org.au/Portals/46/Policy/PCA Residential Aged Care and End of Life Position Statement.pdf

86. Thomas K, Meehan H. Gold standards framework. A programme for community palliative care. 2003. http://www.goldstandardsframework.nhs.uk...

87. Hirth V, Baskins J, Dever-Bumba M. Program of all-inclusive care (PACE): past, present, and future. J Am Med Dir Assoc. 2009;10(3):155-60.

88. Daley A, Matthews C. Heart failure and palliative care services working in partnership: report of a new model of care. Palliat Med. 2006;20(6):593-601.

89. American College of Physicians. The advanced medical home: a patient-centered, physician-guided model of health care. Philadelphia: American College of Physicians; 2005: Position Paper. (Available from American College of Physicians, 190 N. Independence Mall West, Philadelphia, PA 19106.)

90. American Academy of Pediatrics. Medical Home Initiatives for Children with Special Needs Project Advisory Committee. The medical home. Pediatrics. 2002;110(1 Pt. 1):184–86.

91. Stjernswärd J, Foley KM, Ferris FD. Integrating palliative care into national policies. J Pain Symptom Manage. 2007;33(5):514-20.

92. The Expert Advisory Group on Cancer and the Chief Medical Officers of England and Wales. A policy framework for commissioning cancer services. 1995. Disponible en: http://www.dh.gov.uk/en/Publicationsands...

93. US Clinical Practice Guidelines for Quality Palliative Care, 2009.  Disponible en: http://www.nationalconsensusproject.org/...

94. National Institute for Clinical Excellence. Improving Supportive and Palliative Care for Adults with Cancer. London: National Institute for Clinical Excellence; 2004. Disponible en: http://www.nice.org.uk/nicemedia/pdf/csgspmanual.pdf

95. Tweed SC. Seven performance-accelerating technologies that will shape the future of home care. Home Healthcare Nurse. 2003;21(10):647-50.

96. Stiell A, Forster AJ, Stiell IG, van Walraven C. Prevalence of information gaps in the emergency department and the effect on patient outcomes. CMAJ. 2003;169(10):1023-8.

97. Smith PC, Araya-Guerra R, Bublitz C, Parnes B, Dickinson LM, Van Vorst R, et al. Missing clinical information during primary care visits. JAMA. 2005;293(5): 565-71.

98. Boling PA. Care transitions and home health care. Clin Geriatr Med. 2009;25(1):135-48.

99. Coleman EA, Bereson RA. Lost in transition: challenges and opportunities for improving the quality of transitional care. Ann Int Med. 2004;140(7): 533-6.

100. Elwyn G. Safety from numbers: identifying drug related morbidity using electronic records in primary care. Qual Saf in Health Care. 2004;13:170-1.

101. Last Acts: A vision for better care at the end of life. http://www2.edc.org/lastacts/issues.asp (accessed 15 Jul 2009).

102. Diem SJ, Lantos JD, Tulsky JA. Cardiopulmonary resuscitation on television. Miracles and misinformation. N Engl J Med. 1996;334(24):1578-82.

103. Gysels M, Higginson IJ. Interactive technologies and videotapes for patient education in cancer care: systematic review and meta-analysis of randomized trials. Support Care Cancer. 2007;15(1):7-20.

104.  Washington KT, Demiris G, Oliver DP, Day M. Home internet use among hospice service recipients: recommendations for web-based interventions. J Med Syst. 2007;31(2):385-9.

105. Willis L, Demiris G, Oliver DP. Internet use by hospice families and providers: a review. J Med Syst. 2007;31(2):97-101.

106. Rozmovits L, Ziebland S.Expressions of loss of adulthood in the narratives of people with colorectal cancer. Evid Based Nurs. 2004 Oct;7(4):126. 2004.

107. Arora et al., 2007

108. Ussher J, Kirsten L, Butow P, Sandoval M. What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer.Soc Sci Med. 2006;62(10):2565-76.

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